Well, I made it through a rough patch yesterday with the help of all you beautiful people. I've been really stressed lately because my illness is causing a lot of tension and stress for everyone. Plus I am having some family issues too.
But moving on, I've been battling RLS something fierce for the past few weeks. I haven't been sleeping good at all waking up maybe 4-5 times a night. Like right now, I just got up for the 3rd time tonight and I'm exhausted.
So I'm not getting hardly any sleep, my legs are constantly uncomfortable or achy, and then you got all my problems already with my back, it just sucks. I'm tired of being in pain. My muscles spasm a lot and hurt when they contract.
I luckily don't have the chorea, I don't think I'd ever be able to sleep then. So I have some to be thankful for.
I just want the pain to stop honestly, I want to be able to sleep in my own bed through the night without waking up constantly.
They said that in the Mid-stages that pain is very common, severe pain, and it gets worse until the end of the mid stages when the brain is so damaged that in the late stages, you aren't in pain anymore. I don't wish I was at that point, but sometimes I kind of do.
Anyways, it's really taken a toll on my mental health and my will to quit smoking. I don't want to start over though, I don't want to give up my nearly two weeks so I'm fighting it. I don't want to end up dying quicker than I already am.
So yep I'm here 13 days later, I'm determined still, but I'm tired as heck.
