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Share your quitting journey

Doing more than hanging in there

elvan
Member
0 22 143

Happy Memorial Day to everyone.  I have not blogged in a while and felt like it was probably time.

I had a very busy month of May…son’s wedding, 10 day visit to my oldest daughter, and multiple arguments with the insurance company about the homeowner’s insurance and their urgency to get us into our “new” house.  Never mind that the OLD one is still sitting there.  I think things are going to at least start moving in the right direction after tomorrow.  I should hear from the adjuster and we are meeting with an architect and a modular home builder to see if we can get something up that will meet our needs and move quickly.  We have a bid for the demolition, could only get one contractor to call back.

After I got home from NY, I had an appointment at a pulmonology testing clinic to be followed by an appointment with my pulmonologist.  I had oxygen at night when I was in NY.  I went through a little over an hour of testing in the clinic and, much to my dismay, I failed every test I was given.  I have 20% lung function on one side and just over 40% on the other.  I am trapping air and keeping 203% of what I inhale inside of my lungs, making me feel constantly short of breath.  I spiraled into a depression like I had not felt since the fire.  I felt like this was it, this was the end.  A very wise lady (Youngatheart) pointed out to me that I KNEW it was bad, nothing had changed.  I did not need to crawl into bed and pull the covers over my head, no matter how much I felt like I did.  She’s right, nothing HAS changed, I am not SHORTER of breath now that I know how bad it is and I am bound and determined that even if I can’t reverse this, I can stop it in its tracks with exercise, diet, and the meds I am on.  The pulmonologist recommended a harmonica (she said I don’t have to carry a tune, thank God) and pacing myself when I am active.  Use the oxygen at night, avoid exposure to allergens as much as possible, she also changed one inhaler.  I am supposed to be certain to get lots of rest, clearly alternating with exercise.  I just felt so dismayed, I had so hoped for a better outlook.  Sometimes, I surprise myself with how dense I am. This is ALL a result of years of smoking/self-abuse.  If only I could go back and never pick up that first cigarette or, at the very least, QUIT years and years ago, back when I was short of breath for the first time.

I am not going to stay in bed and whine about where I am, I am going to do whatever I can to remain active, even if it is little walks up and down the sidewalk.  I know I can’t do hills but I can walk short distances and at least TRY to expand my lungs…oh and the doctor recommended yoga for COPD, there are a lot of options on line.  I am not sure which one I will go with, I have never done yoga in my life but it is supposed to be good for pain, anxiety, and general wellbeing so by GOD, I will give it a chance. Before the fire, I worked out 5-6 days a week and since the fire, I have been busy but I have not been doing any regular exercise and that is absolutely imperative for my mental health as well as my physical health.  I am not going to just sit back and accept this as being my end.  I am also taking a long and somewhat painful look at my diet, which is horrible.  I am going to all of the COPD support sites and I am reading what other people do to keep active, there ARE other people who are worse off than I am, people who have a diagnosis of cancer or who are on oxygen 24/7.  I am going to stop this disease in its tracks or give it a fight for ITS life!

If you are struggling with your quit, PLEASE, PLEASE, PLEASE pay attention to this blog, please don’t smoke, it is the one thing you can do to prevent the damage from growing like the insidious monster that it is, this addiction is fatal, only you can decide to stop it in its tracks, ONLY YOU!  Take care of your quit like your life depends upon it because it DOES.  Gasping for breath is not a peaceful way to die.

Thank you to everyone who has supported me the past 491 days, I am looking forward to celebrating my 500 day anniversary…I WIN!  Oh no…not Charlie Sheen “WINNING!” Hahahahaha, I AM winning, not the COPD.

22 Comments
YoungAtHeart
Member

THIS is the Ellen I know!  Embrace this life (even with its limitations!) 

Nancy

JACKIE1-25-15
Member

Glad to know that you are doing more than just hanging in there. You are a winner, a survivor, strong, invincable you are
WOMAN!!!!!!!!!!!!! Way to go!

MarilynH
Member

You are a strong lady my friend, yoga sounds really good in all areas of your life. I should check into too for myself just to be able to unwind and my diet sucks big time. Let's look after each other my friend. 500 precious smoke free days just around the corner for you in the meantime congratulations on 491 precious, stupendous, splendiferous, fantastic, fabulous, amazing and wonderful smoke free days yay, yay and yay again. 

Marilyn ☺ 

JonesCarpeDiem

Hugs

Strudel
Member

I am so glad you listened to wise, wise Nancy! Very good advice indeed! I am sorry about the tests though - I can only imagine how tough that would be. But, you have a strong spirit Ellen - that will carry you far!! Great and powerful blog - thanks! Oh - and yoga is great!

Congrats on 491 days! 

Legend
Member

I hope the yoga works out for you.

I first typed in yogo accidently and spell check caught it and I got a good laugh out of it lol.

I keep educating my grandson on anything new about smoking and he tells me he will never smoke he sees how bad it is now. 

djmurray
Member

I'm so sorry your results aren't good, and I feel terrible that I forgot to ask you about them -- I definitely dropped the ball, because when you get bad news like that it's hard to reach out.  But you are a strong woman and you will give this disease the fight of it's life!!  Please let me know if there is anything I can do, my friend.   And congratulations on your wonderful 491 days.  

constanceclum
Member

Ellen, you are such a trooper. I have slightly over 20% lung capacity in both lungs, but my pulnomologist says I can live years if I quit smoking. I will quit smoking with my class in the middle of June. My 1st class is June 2nd and I can't wait.

I did pulmonary rehab which always has good outcomes. I quit because I was still smoking. I felt like I was taking 1 step forward and 2 steps back and didn't want to waste insurance money or mine. However, I am going back after i quit. Lot's of exercize and education. Did you know that white foods retain CO2. They recommend the mediterranian diet. Why hasn't your Dr. ordered pulmonary rehab for you. I would definitely ask him about it.

Connie

Legend
Member

I just was in the kitchen with my grandson having a snack and I told him about your recent test on your lung function and that you have COPD now from smoking and he told me if I had not told him the dangers of smoking when I did back when he was in second grade he would have smoked because a kid approached him in second grade on the playground and tried to get him to smoke that was the first time he had to say no. My grandson just told me thank you nana for telling me how bad smoking is and that made me feel really good inside. 

Barbara145
Member

So sorry for your news.  You will make some changes and maybe the tests will be better the next time.  I am struggling with my COPD also.  We will do our best.  God has a plan for our lives.  Take care.

Giulia
Member

Life it seems is a series of lessons.  We can be defeated or challenged by them.  It's all in how we perceive them.  You are taking this as a challenge.  And thus you will NOT be defeated.  It really surprises me that you only have 20 and 40% lung function for there was nothing in the way you acted in Nashville that  gave any indication of such.  

I think taking up the harmonica is a brilliant idea!  Let us know when you've mastered this song:  Sonny Boy Williams 

Here's a tutorial to get you started:  How to play the harmonica (without words) - this kid is GREAT!

(One of the comments:  "John, just read today a woman with  COPD changed her diet and started playing the harmonica. Months later, she is breathing much better.")

Hang tough!

Jennifer-Quit
Member

Praying for you my friend! 

bonniebee
Member

Ellen I am  so sorry about the test results but if you do the yoga and other excercises and take care of yourself I feel sure you will do well ! You have the motivation and you have quit smoking which is HUGE ! I think your lungs will keep improving . Do you do deep breathing excercises ?

sparky26
Member

I think you are really gonna like yoga , you look like someone who does yoga. I should get back into it , I don't know why I stopped. I go for a breathing test myself on Thursday.

Not really looking forward to it , but then I want to know where I'm at ,sooo We'll just be like hippie chicks , Sitting like Buddha , playing Bob Dylan on the harmonica. LoL 

Storm.3.1.14
Member

You got this, Ellen. You're one of the toughest chicks I know!

And I want pictures of you, on the floor, striking The Camel and The Sunbird.

Hehehehe!

trudyd
Member

Hi Ellen glad you got the testing done it just reinforces quitting when we did was a good idea sounds like you have been quite the traveller good for you!!!

trudyd
Member

Hi Ellen glad you got the testing done it just reinforces quitting when we did was a good idea sounds like you have been quite the traveller good for you!!!

Terri103
Member

Hi Ellen, gosh I just LOVE your quit number.  Hated seeing those other numbers.  So, I'm hoping you find a way to keep looking for the healthy options so that you will feel better.  When people have heart attacks, there is rehab to help them.  Is there any kind of COPD rehab where you can get healthy exercise or breathing exercises, breathing treatments?  Are you close to a medical/teachinig hospital where you might be chosen for a clinical trial of new methods?  You are such a fighter, have such a positive spirit, I wish for you the best of health, that you find yourself breathing easier.  Thanks for being such a positive inspiration in my life!!  

freeneasy
Member

So sorry to read this news Ellen. I would be devastated too.  I have a referral from my doc to get a chest CAT scan and to see a pulmonary doc-I have been putting it off.. We have done the #1 best thing -quitting smoking. Both of my parents were on oxygen and never quit until the day they died. You are a Winner and congrats on your upcoming 500 days!

Ms.J_11-10-2013

You will beat this my friend, I have faith in you!!!!  We cannot always accept what is being thrown our way but we must learn to deal with it the best way we know how.  After my little ordeal this past week I can only thank god that I had quit when I did.  It was a huge positive after so many negatives...

I so love you to the moonand back and I pray for you each and every day!

xoxo

Ms J 

OxfordComa
Member

I HIGHLY recommend Yoga and meditation!!! Keep up the good fight, E, you're worth it!! ❤️ 

thenunn2
Member

Hello Ellen and my sincere thoughts and best wishes to after all you have been through recently, I can only imagine how you must have felt seeing your home and pets go that way. I am new here and have just read a few of your blogs and others comments..what a wonderful bunch of 'friends you have . I am sorry your test results were not better for you,but as your attitude shows ,you wont be beaten ..not by fire,not by pain and not by copd..youre an inspiration to the strength of the human spirit Ellen .

And congratulations on your 500th anniversary 🙂 amazing after all your trials you still kicked butt . I am only 499 days behind you 🙂 i pray i am as strong as you .

with love  and thanks ..jan 

About the Author
Retired RN, worked ICU/ER developed RA in early 90's, unable to work because of brittle bones from high dose steroids. Diagnosed with COPD 5 yrs ago but sure it was there and progressing long before. Live with severe chronic pain, degenerative disc disease, had both upper lobes of my lungs removed in 2015. Struggle with shortness of breath. Work in son's cafe as a cashier 2 days a week to be around people. I am a people/animal person. Lost my home and three cats in a fire on my ten month anniversary of quitting smoking. Never thought of smoking, knew it wouldn't help anything.